Having a Special Child
| Life with a handicapped child is
very different from life with a "normal" child. Katrina
was my first. Because of this, I didn't really know what was normal
until I had other children. I have often been asked how I dealt with
it all. To be honest it snuck up on me. It started with not
seeing well, to seizures, to delayed motor development, to
multi-handicapped. Many different doctors, saying many different
things. Some were right, some were wrong. Some gave hope,
others despair. I look back on it all now and wonder how I didn't
let it get to me. We really didn't know the extent of her handicaps
until she was about 4-years-old. Even then, things developed as she
got older. But my wish here is not to give you her story, but give
hope. Katrina was extremely handicapped. She could not talk, walk, feed herself, or do the basic toiletries. She could drink out of a straw, and bring sunshine to anyone she came into contact with. She couldn't do much, but what she did was wonderful. |
|
Nothing can prepare a parent for
having a baby born 'not right'. The day you find out you are pregnant you
begin to envision what life will be like. You imagine having a baby, it
grows up, graduates from school, gets married, has a family making you a
grandparent. When the baby is born with something really wrong, you not
only loose what you expected in that baby, but all the things that baby was to
grow to be. In many ways it is like the child has died, but not really.
Once a friend asked me to talk to
someone they knew, a mother of a 7-year-old boy who had fallen into
a pool and literally drowned. They brought his body back to life, but not
him. I told my friend that I would happily talk to the mother, but I
really couldn't relate. You see, I hadn't lost a 7-year-old child.
When a child is born into the handicap you don't know anything else. You
did loose the dreams, but not who they were.
Mom's email
![]()